WELCOME

Welcome to the “Nothing about us without us” virtual convening website. This website has a series of short videos and handouts that are designed to enhance your experience of our convening sessions by providing background material that you can watch and read before the convening – on your own time – allowing us to spend almost all the time during the actual live sessions in conversation and connection. We will be updating this site throughout the convening and beyond.

BACKGROUND

The landscape of Patient-Centered Outcomes Research and Community-Engaged Research (PCOR/CER) focused on LGBTQIA+ individuals has been historically limited by: a) a focus on pathology (specifically HIV, psychiatric diagnosis, and trauma); b) a “top-down” model, wherein research priorities are identified by funders or researchers, rather than the community; and c) a dearth of representation in scientific circles of LGBTQIA+ individuals. At the same time, a number of community health centers (CHCs) have been founded across the country, specifically to serve and respond to the needs of LGBTQIA+ individuals. These CHCs have a wealth of knowledge and experience about the PCOR/CER interests and concerns of their patient population and are considered trusted allies and resources for their patients and other community stakeholders. However, these CHCs lack an infrastructure within which to convene to set priorities for an LGBTQIA+ focused PCOR/CER agenda, and lack the in-house research knowledge and expertise needed to secure large-scale grant support.

PURPOSE

The purpose of this convening is to bring together patients, providers, administrative leadership, researchers, and advocates from Callen-Lorde Community Health Center (NY), Howard Brown Health (IL), Legacy Community Health (TX), Lyon-Martin Health Services (CA), and Whitman Walker Health (DC), five of the leading LGBTQIA+ community health centers in the United States. The primary objective of this convening is to develop a stakeholder-driven, multi-pronged agenda for PCOR/CER to advance health equity goals for LGBTQIA+ communities. This convening is the first step in a larger strategic planning process designed to identify: a) research priorities that are shared among stakeholder groups; b) strategies for building research capacity within each CHC; c) strategies for increasing training opportunities and representation of LGBTQIA+ individuals in all aspects of the research process, and d) opportunities for cross-center collaboration on a coordinated PCOR/CER agenda.

Video Introduction to Convening

This short video introduces the convening project and what we hope to get out of our time together.

Welcome & Kickoff: June 17, 2021, Live Discussion

Time: 1:00PM-3:00PM (EST), 12:00PM-2:00PM (CST), 10:00AM-12:00PM (PST)

Session 1 VIDEO: Identifying shared research priorities

This video presents feedback from the listening sessions about research topics and priorities that are most important across our four stakeholder groups – patients, direct care providers, health center administration, and researchers.

Session 1: Video HandoutS

Session 1: June 21, 2021, Live Discussion

Time: 1:00PM-3:00PM (EST), 12:00PM-2:00PM (CST), 10:00AM-12:00PM (PST)

The purpose of this session is to establish consensus on high-priority research needs that will act as a strategic blueprint for potential short-term and long-term collaborative projects.

Session 2 Video: Building Research Capacity within and among LGBTQIA+ Health Centers

This video presents feedback from the listening sessions about the main strengths and challenges in terms of building research capacity across the five health centers.

session 2: video handouts

session 2: June 22, 2021, live discussion

Time: 12:00PM-2:00PM (EST), 11:00AM-1:00PM (CST), 9:00AM-11:00AM (PST)

The purpose of this session is to identify specific resources and infrastructure needs that would enable CHCs to engage more fully as both research partners and lead investigators.

session 3 Video: Increasing LGBTQIA+ stakeholder inclusion And engagement in research

This video presents feedback from the listening sessions about research participation, and whose voices are being left out of research, and why. We discuss stakeholder suggestions for increasing LGBTQIA+ inclusion and engagement in research.

Session 3: video handouts

session 3: June 22, 2021 Live discussion

Time: 3:00PM-5:00PM (EST), 2:00PM-4:00PM (CST), 12:00PM-2:00PM (PST)

session 4 Video: Opportunities for cross-center collaboration

This session is designed to identify potential research questions for an implementation science study that could also be done within/across health centers.

SESSION 4: JUNE 23, 2021, LIVE DISCUSSION

Time: 1:00PM-3:00PM (EST), 12:00PM-2:00PM (CST), 10:00AM-12:00PM (PST)

WRAP-UP & NEXT STEPS: JUNE 23, 2021 Live Discussion

Time: 3:00PM-4:00PM (EST), 2:00PM-3:00PM (CST), 12:00PM-1:00PM (PST)

VIRTUAL CONVENING JUNE 2021

The primary objective of this convening is to develop a stakeholder-driven, multi-pronged agenda for patient-centered, community-engaged research that can advance health equity goals for LGBTQIA+ communities.

WELCOME

BACKGROUND

PURPOSE

Funding Acknowledgement Statement

Video Introduction to Convening

Welcome & Kickoff: June 17, 2021, Live Discussion

Session 1 VIDEO: Identifying shared research priorities

Session 1: Video HandoutS

Session 1: June 21, 2021, Live Discussion

Session 2 Video: Building Research Capacity within and among LGBTQIA+ Health Centers

session 2: video handouts

session 2: June 22, 2021, live discussion

session 3 Video: Increasing LGBTQIA+ stakeholder inclusion And engagement in research

Session 3: video handouts

session 3: June 22, 2021 Live discussion

session 4 Video: Opportunities for cross-center collaboration

SESSION 4: JUNE 23, 2021, LIVE DISCUSSION

WRAP-UP & NEXT STEPS: JUNE 23, 2021 Live Discussion